endo myths
Endo myths
Below I list some of the most common and, I believe, some of the most disconcerting myths about endometriosis, all of which are false.
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It affects only women – FALSE
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It only affects women over 20 years old - FALSE
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It only affects women who have never given birth - FALSE
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It disappears with pregnancy - FALSE
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It only affects the female reproductive system - FALSE
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It disappears if we remove the uterus - FALSE
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It disappears during menopause - FALSE
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The level of pain corresponds to the stage of the disease - FALSE
1. It only affects women
FALSE. Although extremely rare, there are cases of men who have developed endometriosis. Particularly, men who have taken hormone therapy with oestrogens to treat prostatic cancer and men with liver cirrhosis [1].
2. Only affects women over 20
FALSE. Teenagers also have endometriosis! Endometriosis is the main cause of dysmenorrhea (menstrual pain) in adolescents. In fact, studies indicate that endometriosis can form even before menarche and that 66% of adult women with endo report having had symptoms before the age of 20 [2].
3. It only affects women who have never given birth
FALSE. This is a prejudice that only began to dissolve in the mid-1990s! For many years, doctors and researchers postulated that endo affected “career women,” i.e., those who delayed motherhood [3].
4. Disappears with pregnancy
FALSE. Pregnancy decreases oestrogen production. Therefore, during pregnancy, the condition improves. However, it returns with the normalisation of hormone production. On the other hand, “complications during pregnancy are more frequent in women with endometriosis: premature birth, placenta previa, babies with lower weight at birth”… [4].
5. It only affects the female reproductive system
FALSE. In most cases, patients are mainly affected in the female reproductive organs, particularly in stage 1 and 2 endometriosis. However, endometriosis can appear anywhere, even in the eyes [4].
6. It disappears if we remove the uterus
FALSE. If you do not remove all pre-existing endometriosis, which may be impossible (imagine a dots spread over an area), the ovaries will continue to produce oestrogen and therefore feeding the endometriosis [4].
7. It disappears during menopause
FALSE. It is true that during menopause the ovaries no longer produce the same amount of oestrogen, the tendency is for endometriosis to regress and no longer cause symptoms. However, 2%–4% of menopausal women experience symptoms of endometriosis [5]. One must also consider that many menopausal women need to take hormone replacement therapy with oestrogen [6].
8. the level of pain corresponds to the stage of the disease
FALSE. Most of the time, the scale of the disease refers to purely physiological factors and not exactly the level of pain (see stages of the disease). Women with endometriosis only in the ovaries can suffer terrible pain during menstruation, while other women can have endometriosis already infiltrated in the intestines and still have no symptoms or very mild symptoms that don't even worry them.
References
[1] Endometriosis in men - Endometriosis news. (2018, 21 de Novembro). Endometriosis News. Retrieved on November 20, 2024, from https://endometriosisnews.com/endometriosis-in-men/
[2] Dessole, M., Melis, G. B., & Angioni, S. (2012). Endometriosis in adolescence. Obstetrics and Gynecology International, 2012, 1–4. https://doi.org/10.1155/2012/869191, Retrieved on December 9, 2024
[3] “Career Woman’s Disease” to Endometriosis Awareness Month. (2019, 30 de Março). Empowered Women’s Health. Retrieved on December 9, 2024 from https://www.volusonclub.net/empowered-womens-health/from-the-career-womans-disease-to-endometriosis-awareness-month-changing-attitudes-about-womens-health/#:~:text=Doctors%20and%20researchers%20suggested%20that,persisted%20well%20into%20the%201990s
[4] Carmona, F. (2022). Endometriose (1st ed.). Arteplural Edições
[5] Jakson, I., Hirschberg, A. L., & Gidlöf, S. B. (2023). Endometriosis and menopause—management strategies based on clinical scenarios. Acta Obstetricia Et Gynecologica Scandinavica, 102(10), 1323–1328. https://doi.org/10.1111/aogs.14583 Retrieved on December 9, 2024
[6] Secosan, C., Balulescu, L., Brasoveanu, S., Balint, O., Pirtea, P., Dorin, G., & Pirtea, L. (2020). Endometriosis in Menopause—Renewed attention on a controversial disease. Diagnostics, 10(3), 134. https://doi.org/10.3390/diagnostics10030134 Retrieved on December 9, 2024